Amazon Smile is a great program for Amazon shoppers to support Cure ATRT Now. Same products, same prices. Just register and select Cure ATRT Now as your charity. A portion of most purchases will be automatically donated to Cure ATRT.

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You can add a browser plugin to automatically ensure you're ordering from Smile each time you visit Amazon.

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Chrome

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Safari: With the release of Safari 12.0, many of the Amazon Smile plugins no longer function. The SmileAllDay plugin, available in the App Store continues to function properly.

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Firefox

We continue to fight to find a cure for ATRT. This is a long & complicated fight but we are making progress, albeit slowly. This is the research that you & all our generous donors have helped to support over the past few years. We couldn't do this without you. 

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Epizyme recently announced results of their Phase I data on patients who have INI1-deficient tumors. Recall that phase I is a dose escalation to ensure safety so most patients get a dose that is substantially below the final dose. That said, the results are quite encouraging – they even had three complete responses. This is quite unusual in a phase I trial and it is now going on to phase 2.

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We know this isn't yet the cure we need but we will keep working until we get there. 

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To those families that are struggling daily with AT/RT, let this be your Hope.

To families that have lost their beloved child to this disease, we do this to honor your brave babies.

Data will also be presented from preclinical studies demonstrating synergistic activity following the addition of tazemetostat to current small molecule treatments for malignant rhabdoid tumors and atypical teratoid rhabdoid tumors, both rare and aggressive forms of cancer with high unmet medical need.

On September 24th, an abseil event to benefit Cure ATRT Now was held in Derbyshire, United Kingdom. The successful event was organized by the family of Lucy a three-year old girl who was diagnosed with AT/RT at just 10 months of age. Congratulations to everyone involved!

Donations in Lucy's honor can be made on Lucy's tribute page.​

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Thank you to everyone who made Avapalooza 2016 another huge success!

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As part of this year's event, Cure ATRT Now was pleased to present Dr. Charles Roberts with a check for $106,000 for AT/RT research at St. Jude's Research Hospital.

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If you're interested in supporting Cure ATRT Now in its fight against pediatric brain cancer, you can donate here:

On April 16 the inaugural Brave Childrens 5K and Princess Sophiella Kid's Dash was held in Riverbend Park in Jupiter, FL. Sophiella's father, Michael Kukie who organized this successful event to benefit Cure ATRT Now provided an overview:

"The park is beautiful with nature trails and many native animals, including peacocks! Approximately 200 people participated, a great turnout for the first year, and I hope to have twice that number next year. When I tally the final figures, close to $8000 will be donated to CureATRT.org. Thanks to all who participated and donated, from the bottom of my heart."

Avapalooza 2016 is on May 21. Join us in person, donate, or register as a satellite spinner to raise funds help fight pediatric brain cancer. All funds go directly to pediatric brain cancer research.

Recently published research by Johann et al. show that ATRTs are composed of three epigenetic subgroups that have different clinical characteristics, and identify subgroup-specific regulatory networks that suggest potential therapeutic targets.

Epizyme announces first patient dosed in global clinical program. Dana Farber Cancer Institute and Cincinnati Children's Hospital are the first sites activated for pediatric enrollment.

From October 25th (Avalanna's birthday) through November 26th Cure ATRT Now is sponsoring Let's Nail Cancer, a global social media campaign to bring awareness and raise research funding for pediatric brain cancer.

#Let'sNailCancer

This presentation contains a lot of information, much of it very technical. The study is not specific to AT/RT, but does include AT/RT patients and could offer a promising new treatment for AT/RT.

In January 2014, Krista lost her beautiful son, Brennan, at 6 months old, to AT/RT. Brennan was a sweet, gentle boy who brought so much happiness and joy to his family.

Krista has committed to raising $5,000 for pediatric brain cancer research. When she reaches this amount, she will shave her head in honor of Brennan. In addition, Krista will donate her hair to Wigs for Kids. We are honored to have Krista join Cure ATRT in our fight against AT/RT. Brennan will be forever loved & missed - always.

If you'd like to support Krista and Cure ATRT Now, please visit Brennan's Tribute page.

Epizyme, Inc. (NASDAQ: EPZM), a clinical stage biopharmaceutical company creating novel epigenetic therapies for patients with cancer, today announced the U.S. Food and Drug Administration (FDA) has accepted the company’s investigational new drug (IND) application for tazemetostat for the treatment of adults and pediatric patients with INI1-negative tumors or synovial sarcoma. In the second half of 2015, Epizyme plans to initiate a multi-center phase 2 study in adults and a multi-center phase 1 study in children to evaluate tazemetostat in patients with relapsed or refractory INI1-negative tumors or synovial sarcoma.

Please visit the new Tributes pages to make a donation on behalf of a child afflicted with AT/RT.

Update: the official total raised by at 4th Avapalooza is $126,000 for AT/RT research. Thank you to everyone who participated!