Our beautiful brave daughter Lucy makes us smile every single day. She is now a happy and thriving little girl but at just 10 months of age her life was turned upside down and as parents we received the most unimaginable news possible.
Lucy was diagnosed with ATRT in August 2014. We feel blessed to still have her with us but the brutal treatment she had no choice but to have, has left her with potentially life-long side effects.
She has lost the ability to swallow and is peg fed as well as losing a lot of her hearing. We live in fear that this terrible disease will return one day.
Lucy is our inspiration for fundraising for ATRT research and I hope she will be for you too. All donations are so gratefully received as we so desperately want to help find a cure for ATRT, including kinder treatment plans.